We need to collect certain personal details and clinical information about you such as:
- Address including postcode
- Date of birth
- Ethnic origin
- Country of residence
- Blood group
- Tissue type
- If you receive a transplant a record of your transplant including a link to your donor
- Current and past medical history
- Other specific clinical and physical information
Making your transplant happen
It is important that the data held on individual patients awaiting a transplant is recorded accurately and kept up to date, to ensure that no one is allocated an incompatible organ or is disadvantaged in the matching and allocation process.
All patients in need of a transplant should be registered on the UK Transplant Registry and certain data items must be reported to NHSBT at the time of registration to ensure that a patient appears on the computerised matching run for available organs.
Without this information NHSBT will not be able to offer you a transplant.
After you receive your transplant
There is a current legal requirement under the Human Tissue Act 2004 or Human Tissue (Scotland) Act 2006 (HTA Act), that the use of all organs donated for transplant is reported to NHSBT.
In addition, information relating to transplants and subsequent clinical assessment is very important as analysis of aggregated data provides valuable evidence contributing to the improvement of organ allocation schemes and direct patient care.
These data contribute to ensuring that transplants are carried out as effectively as possible to achieve the best outcome for individual patients.
Specialist advisory groups advise on the data to be collected and agree allocation procedures for all organ types.
Advisory groups comprise surgeons, physicians and scientists who are experts in their branch of transplantation.
Through the Advisory Group structure, the rules governing allocation are kept under review and changes made as necessary.