Going on the transplant waiting list

Find out how to join the kidney transplant waiting list

Key points

You will need to go on the national transplant waiting list to receive an organ from a deceased donor
This is a list of all the people in the UK who are waiting for an organ from a deceased donor.
The transplant list is not a queuing system, it matches donated organs to the patients based on many different factors
Offers can come through at any time, so make sure your mobile phone is always on

What is the transplant waiting list?

This is a list of all the people in the UK who are waiting for an organ from a deceased donor. It covers all organ transplants, including heart, lung, kidney, liver, pancreas and small bowel. To receive a kidney from a deceased donor, you need to join the list.

How long it the wait for a kidney?

How does the waiting list work?

The transplant waiting list is not queuing system, where the first person in the queue is offered the next available organ. It is more of a matching system. Many factors are used to decide which patient is most suitable to be offered a donated organ.

Learn more about the organ offering system

To be accepted on the transplant waiting list for a kidney

You need to be expected to be alive in five years time
Your transplant team need to agree that you are suitable for an organ transplant from a deceased donor

You transplant team will give you more information on this.

Before you join the transplant waiting list

You will have tests to check your health and organ function
The benefits and risks of a kidney transplant will be clearly explained to you
You may be asked to sign a consent form to say that you agree to have a deceased donor transplant. Your transplant team will explain their process to you
Some personal information will need to be held by the UK Transplant Registry, which is used in organ offering
You may need to be vaccinated before you can be ‘activated’ on the transplant waiting list. This is to help reduce the risk of infection after a transplant

View selection and allocation procedures for kidneys

While you’re on the transplant waiting list, make sure you tell your transplant team if:

You become unwell

Some illnesses can affect how well the transplant works. If you’re unwell, tell your transplant team straight away. They will put your place on the transplant waiting list on hold until you’re well enough to have the operation. This means you will be ‘suspended’ on the list and won’t be offered an organ when you’re not well enough to receive it. It’s only temporary until you are fit enough for a transplant.

If you have a serious, long-lasting illness, you may need to have more tests before you can go back on the list. This is to check you’re still able to have a transplant within an acceptable risk level. With all transplants, the benefits must outweigh the risks. If the risks are too high, it may be better for you to come off the list completely. This will be discussed with you.

You are admitted to hospital

Your contact details change

Make sure your medical teams have your most up-to-date contact details so they can reach you if an offer comes in.

This includes:

Home phone number
Mobile phone number
Work phone number
Phone numbers of your next-of-kin

You need to be contactable at any time of the day or night once you are ‘active’ on the transplant waiting list.

Always keep your phone switched on

If your transplant team cannot contact you within 45 minutes of receiving an organ offer, they may need to turn down the offer. You can’t receive a transplant if your transplant team can’t contact you.

You need dialysis outside the UK

If you ever need dialysis outside the UK, it is important to tell your kidney team. They will need to decide whether your place on the list needs to be put on hold temporarily. This is because in some countries outside the UK there is a risk of picking up serious infections during dialysis treatment that could cause serious harm to you after a kidney transplant. You might need to wait a few months after you get back to the UK until your team can be sure that you haven’t picked up an infection. You can then go back on the transplant waiting list.

What else do you need to know while you’re on the transplant waiting list?

You'll have annual checks

How to get to the transplant centre

Where to turn to for support

We understand that waiting for a transplant is very stressful for you and your loved ones. If you feel that you need extra support to cope with this, please contact your transplant team. Social workers and psychologists are available to offer advice and support. There may be other transplant patients who can offer advice and support – your transplant team can arrange for you to meet them.

If you have questions about your medications or health while you are on the transplant waiting list, please ask your care team.

More about support

Research studies