Lung transplant support groups

Who is it for?

• Patients with pulmonary fibrosis on the lung transplant waiting list
• Patients with pulmonary fibrosis who are lung transplant recipients

Where do they meet?

Online, via Zoom.

When do they meet?

Every 5- 6 weeks.

How do I join?

Visit the Action for Pulmonary Fibrosis website for details

Who is it for?

• Patients on the heart, lung or combined heart and lung transplant waiting list
• Heart, lung and combined heart and lung transplant recipients
  Patients who have a ventricular assist device (VAD)
• Family, supporters and carers

The Café is a space to meet with others with similar experiences and to share and gather useful information.

The Café may also give members the opportunity to think about the impact of their medical journey within a supportive atmosphere.

A Clinical Psychologist will be present to facilitate the conversation and to help with any questions.

Where do they meet?

Online, via Microsoft Teams.

When do they meet?

On the 1st Wednesday of every month, 2- 4pm.

How do I join?

Please contact Clinical Psychologist Dr E. Lucy Attenborough:

• By email
• By phone: 0191 213 8248 (Wednesday 8- 6pm, Thursday & Friday 8-3pm)

Who is it for?

• Patients on the heart, lung or combined heart and lung transplant waiting list
• Heart, lung and combined heart and lung transplant recipients
• Family, supporters and carers

The format of the meetings is informal, with a focus on peer support and patient–led conversation facilitated by a clinical psychologist for cardiothoracic transplant.

Where do they meet?

Online, via Microsoft Teams.

When do they meet?

• On the 1st Tuesday of every month, 11- 1pm

The group are hoping to resume face-to-face meetings in the future, with the option to join the meeting remotely.

How do I join?

• Please contact the group by email
• Alternatively phone 0161 291 2200

Who is it for?

Patients on the heart, lung and heart and lung transplant waiting list
Family, supporters and carers

Where do they meet?

Online, via Microsoft Teams.

When do they meet?

Monthly, on a Friday morning between 10-11am

How do I join?

Please contact the group using any of the details below:

• Email Beverley Jones, Transplant Social Worker
• Email the shared Manchester University NHS Foundation Trust Transplant Social Work address
• Alternatively, phone 0161 291 2695

Who is it for?

• Patients being assessed for heart or lung transplants at The Queen Elizabeth Hospital, Birmingham
• Heart and Lung transplant patients on the transplant waiting list at The Queen Elizabeth Hospital, Birmingham
• Heart and lung transplant recipients
• Family, supporters and carers

The Group was set up by Leah Biggs, a transplant recipient. There are also two transplant recipients on the Admin Team.

Where do they meet?

Online, they are a private Facebook support group.

When do they meet?

The group is available at all times to members.

How do I join?

• Search 'Heart and Lung Transplant Patients Birmingham QEH' on Facebook
• Click on the ‘Join group’ link and answer the membership questions
• A member of the Admin Team will message you for further details as needed

Who is it for?

• Patients on the heart and lung transplant waiting list
• Heart and Lung transplant recipients
• Family, supporters and carers

Where do they meet?

Online, they are a private Facebook support group.

When do they meet?

The support group is available all the time.

How do I join?

• Search Royal Papworth Transplant Social and Support Group on Facebook
• Click on the ‘Join group’ link and answer the membership questions

Who is it for?

• Heart and lung transplant patients on the transplant waiting list
• Heart and lung transplant recipients
• Family, supporters and carers

Where do they meet?

Mostly online, via Facebook.  There are some face-to-face meetings at clinic at Harefield Hospital.

When do they meet?

The Facebook group is available at all times to members. Details of any face-to-face meetings should be provided there.

How do I join?

• Search 'Harefield Transplant Club' on Facebook
• Click on the ‘Join group’ link and answer the membership questions
• A member of the Admin Team will message you for further details as needed

More information is available on the Harefield Hamsters Transplant Club website.