Archie needs blood transfusions every three weeks


Archie has a rare blood disorder
Archie is being kept alive by the generous act of giving blood.
Craig, Archie's dad

Archie Ramshaw may be only ten years old, but a rare blood disorder means that he has already had more blood transfusions than most people will need in their lifetime.

Archie was diagnosed with an extremely rare form of anaemia called Congenital Sideroblastic Anaemia. This means his bone marrow is unable to produce healthy blood cells.

Sideroblastic Anaemia stops Archie's body transferring the iron in his blood into haemoglobin, which red cells need to transport oxygen efficiently. 

Until a cure can be found for the condition, Archie needs to have blood transfusions of healthy red cells every three weeks.

The whole blood transfusion process can take a full day.
Craig, Archie's dad

Craig, Archie's dad, said: "The whole blood transfusion process can take a full day. Firstly, Archie will have a meeting with the paediatric consultant and then he needs to be cross-matched to ensure that he receives the correct blood type. Once the results are in, and this can take a few hours, Archie will go on to have his transfusion which usually lasts around four hours."

Archie's condition is so rare that Craig only knows of two other families who have children with the condition and both of them live in America.

"Through Archie, my wife and I have become champions for blood donation. Archie's quality of life depends on the blood that he receives and he is being kept alive by the generous act of giving blood. When we started this journey, we were thrown into the deep end and I have set up a website to help raise awareness of the disorder."

 

See all patient and donor stories



You may also be interested in