Information for researchers

How to get patients and the public involved in your research

Why patient and public involvement is important

Patient and public involvement is vital in research. It ensures that the outputs of research are relevant and applicable to those who will actually benefit from it.

Involvement can be at all stages of the research cycle.

How to register for patient and public involvement

NHS Blood and Transplant (NHSBT) run the Patient and Public Advisory Group (PPAG).

This group of patient and public representatives can support with developing and running research projects, sharing results and informing policy makers and the public.

If you would like to register for PPAG involvement in your research, you will need to:

If you have already registered but forgotten your registration details please enter your details on the lost link form and your details will be emailed to you. 

Payment guidance

There are many types of public involvement activities, and public contributors can be involved in all stages of the research cycle. Therefore there is no ‘one size fits all’ approach to payment for patients or members of the public getting involved in research.

NHSBT offers a flexible approach to payment and tailored support is needed to meet specific needs. Read our reimbursement policy (PDF 347KB) to find out more.

We do expect that ‘out-of-pocket expenses’ are always reimbursed, should they be incurred. This is in line with how all volunteers are paid.

Researchers are able to offer payments for participants' time. NHSBT has a process in place in order for these payments to be made. Please email for more guidance.