Patient and Public Advisory Group

The NHS Blood and Transplant (NHSBT) Patient and Public Advisory Group (PPAG) will ensure that patients and the public are involved and embedded in all aspects of the research process at NHSBT.

This group and lay members will be a resource for NHSBT researchers to draw upon, to support them in developing and implementing research projects. 

Members of the public

Someone who is not an academic researcher but who may be able to offer a unique perspective.

Patients

Someone who may have a particular health condition which gives them insight into life with an illness or special set of needs.

Carers

Someone with experience of looking after someone with a health condition.

This group has been established to provide support and encourage NHSBT’s researchers to actively seek patient and public involvement and engagement in their research at all stages. There are many ways to be involved in the NHSBT Patient and Public Advisory Group. The support you may be asked to provide includes, but is not limited to:

• Protocol development
• Reviewing research documents and providing feedback
• Working closely with researchers to  manage research projects
• Helping researchers disseminate research results at the end of a study

For more information on NHS Blood and Transplant Patient and Public Advisory Group, please read our Management Process Description document.

If you would like to join the NHSBT Patient and Public Advisory Group please complete the Patient and Public Advisory Group Registration Form

Newsletters are published on a quarterly basis and include all the latest news about Patient and Public Involvement and Engagement in NHSBT research, as well as a spotlight on a PPAG member and NHSBT researcher. 

Please click a link below to view the corresponding newsletter via the Microsoft Sway platform.

• Autumn/Winter 2022
• Spring 2022
• Autumn/Winter 2021
• Spring/Summer 2021
• Autumn 2020
• Summer 2020
• Spring 2020
• Winter 2019
• Autumn 2019
• Summer 2019
• Spring 2019
• Autumn 2018

• Terms of reference 
  • This document summarises the scope of PPAG membership.
• Management process document (MPD) 
  • The purpose of this document is to provide the reader with background information on the management and processes of NHSBT PPAG.
• Research Governance Office privacy policy 
  • This document explains how your data will be managed if you join NHSBT PPAG.
• Patient and Public Advisory Group member reimbursement policy 
  • This document outlines the guidelines around the reimbursement of expenses incurred by members of the Public and Patient Advisory Group when contributing to research related tasks.  

This is a glossary of research terms that appear within the documents provided above. 

• BTRU - Blood and Transplant Research Unit
• CI - Chief investigator
• CTIMP - Clinical Trial of an Investigational Medicinal Product
• GCP - Good clinical practice
• IMP - Investigational Medicinal Product
• IRAS - Integrated Research Application System
• Lay member - members of the public who take part in patient and public involvement and engagement activities 
• PI - Principal Investigator
• RCT - Randomised Control Trial
• REC - Research Ethics Committees
• TMG - Trial Management Group

INVOLVE is a national advisory group that supports greater public involvement in NHS, public health and social care research, and was established in 1996.

INVOLVE has created an online resource for researchers new to Patient and Public Involvement and Engagement which provides guidance on how to involve members of the public in research.

Topics covered include:

• What is public involvement in research?
• Why involve members of the public in research? 
• Why members of the public get involved in research 
• How to involve members of the public in research – planning and preparation 
• Who should I involve and how do I find people to involve?
• Approaches to public involvement in research
• Ways that people can be involved in the different stages of the research cycle 
• What to do when things go wrong

For information please visit the INVOLVE website