Alex's Story

Alex was diagnosed with a rare form of heart disease, truncus arteriosus, before he was born. The condition meant he had no pulmonary valve and at two weeks old, he had his first operation. Alex was given a donated heart valve but unfortunately it later failed so at 18 months old he faced further surgery to receive a replacement valve. Alex is now a happy three-year-old although he will need more procedures throughout his life.

Alex's mum, Julie, said: "After his first operaton he did remarkably well but there were complications the second time which left him with difficulties. He is doing fab though, his heart is doing great and looking at him you wouldn't even know anything was wrong.

"It's very humbling, somebody else lost their child and enabled me to keep mine. It's been twice in our case and it's made a huge difference, my little boy is running around enjoying life."

Last updated: 9 July 2014

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